I lately shared a video the place I made a few health-related errors that basically impacted how I used to be feeling. After sharing, I …
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I lately shared a video the place I made a few health-related errors that basically impacted how I used to be feeling. After sharing, I …
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Did you watch me last night cos yes not my best idea but as my daughter says "worth it. " , usually on the way to the bathroom. 😂
Awesome video, thank you so much Maggie ❤
11:32 there is a company called Stickman Communications (I'll check the name). They make special cards. You could stand up and place the card in the space that you were in. That way they can just check your spot and read the card if you leave. No words have to be exchanged. xx
Thank you! Your insights are very helpful!❤
Your earrings are gorgeous, so is your blouse; green is my favorite color.
Hey Maggie a question as a fellow ostomily user (ileo and uro): Sometimes because I always try to stay positieve, people say things like "oh well I think I want to have a ileostoma now because less pain in my stomach seems great!
But they seem te forget the surgery, the stress, the insecurities all day every day like is my stoma leaking..
Do you know what I mean? How do you deal with that?
Your remarks about different types of doctors and primary care doctors are very enlightening. They reinforced what I'm beginning to realize: the various specialists Don't see one's body as a whole. I was frustrated by this but then I realized that's basically their job and I need the primary care physician to sort of hold it all down, etc. AND mine is nearby too, as opposed to the others who all practice at the hospital.
Well, ya really look nice with those greens you're wearing.
Yes. "Regular people" can relate to this too. I think anyone can relate to the idea of over-doing things and so forth and the consequences thereof. Maybe it's to a different degree, but anyone could relate!
I can so relate to this! Dr's and nurses have their generic advice but it does not always apply to a specific individual. It's so great that you said you try to strike a balance between the health pros' expertise and one's own self-knowledge.
In fact, thank you! Because this was a good reminder to me to Believe in myself! It's so easy to put their authority over my lifelong experience with my own body, as they can sometimes be very adamant. Of course it's good to listen and heed what they say sometimes – but sometimes we know ourselves better than they do, and what our bodies can and can't do.
Have done the same thing many times ate what I shouldn’t ate what I shouldn’t had a bad day next day but life goes on
Sometimes we need to have a blowout and do something for enjoyment knowing there will be a payback but decide outweigh it or not , if we get a lot out of it but doesn't make us too ill then it's worth it .
☀️
It would be so amazing to talk to you. I am also a nurse and have a temporary loop ileostomy due to years of colitis, constipation, polyps, belly pain, medications, etc. The plan is a collector and anastomosis but I feel hopeless in this journey. I have had the temporary loop ileostomy for 3 and a half months and am still in the hate stage. I have lost 25 pounds, no food is appealing and I cannot keep an appliance on longer than 2 days, but more often I have a leak within 24 hours. My output will not thicken up no matter what, I have been in the hospital 3 times; My skin is very sensitive and EVERY seal, ring, paste, sheet, etc I have tried has dissolved and I have output on my skin very rapidly. I am so tired of having burning, itching, discomfort around my stoma. Tonight we put a brava protective seal on my skin and a trio siltac seal on top of that and then sat my wafer on top and I am praying with all my being that the silicone seal keeps the output from seeping in between my stoma and the wafer. Any advice appreciated!
Just wanted to say that I have always told people that free advice is worth exactly what you pay for it! Except yours Maggie!
Hey Maggie, I have a question for you. My stoma and everything that comes out of it smells like onions. I have not eaten any for weeks. Have you ever heard of this?
I have an ileostomy and gastropareses. My partner is always saying , well why did you eat it if you are going to puke it back up, I would just say I wanted it. I have a jej that I hook food up at night the fluid feed is all I'm aloud. I have a lot of other illness but I don't talk about them much. So I get what you are saying.
I have a couple of rescue kits. One has my rescue meds & the other is filled with things that make me feel better or things to distract me (fidget, puzzle, game, book, etc). I also have duplicate blankets & pillows in the bedroom & in the living room in my chair. That way I don’t have to carry them from one spot to the other.
My husband often tells me that he can't understand why I eat something that I know will make me sick… Yeah, you can't understand because you are HEALTHY! And also many many times I hear from my family "You are sick again?!" with a tone and a look that insinuates that it's my fault, that I probably ate something I shouldn't have, which most of the time is not really true. I happen to be sick for no reason because I have a CHRONIC illness !
Oh, maggie, been there, done that, at times sadly I still do it. A long time ago I finally got so disgusted with the advice and platitudes that I basically told the close by world, no one can give me any advice unless they go through it first. It has saved me from many troubles. My illnesses have provided me with a life that pretty much sucks, but no one will ever say “if you would only”…. My warm bed, my food processor, my stash of water and powder electrolytes, my dog, and a very quiet area is what is needed. We are not our illnesses, we a humans who happen to have a chronic illness.
Great topic Maggie! I just taught a class to my cancer patients about The state of awareness or "enlightenment". To be aware, to recognize all of our patterns of thoughts and actions and to continue to do better, this is the enlightened person. We are not perfect, nor will we ever be perfect, but to continue to watch, learn, and grow is our responsibility. To do better, to fail, and to start over, again and again. You are doing it, gracefully and humbly. If you're ever free and have the interest I talk about these issues on Old Vine Zen. Many thanks to you and your inspiration!!!
In the middle of months of testing, I changed primary care provider because the doc I bonded with left the group. I'm seeing the new primary in early May. Therefore, I'm dealing with 4 different specialist who I often find don't know what the others have done. Fortunately, I travel with all the reports in case they can't be accessed by the doc.
The 2 ads I had before this video were for 1. A medication and 2. Cookies.
That feels accurate for this video 😂
Peace out is the right thing to do unapologetically I need to care for myself because I've been a little devil🤭 yeah me 😇 I have a Soothing bag of all the little things tgat will bring me vack from tge grave into grace 😋 so that I can hold my head up high again and be my happy self I have cancer recurrences amd a illiostomy forst amd now a colostomy thanks for sharing Maggie 💗
Yip I hear the bathroom visits being out anywhere. Luck my children 🙏 grown and family members don't understand but they do try. Just understanding my son and daughter both have IBD. They get me more than anyone else other than my wonderful husband of 40years. 😊
You are so helpful and reassuring to many, including myself. Thanks Maggie. Also, you're so naturally pretty…nothing phony about you😘
Spot on with today's makeup… although… you don't need makeup.
I've been following you since August 6th when i woke up in the hospital with a colostomy bag. You helped me through some rough times.
I'm now 72 and had my ostomy reversed on 12/26/22. Still enjoy your videos. Your attitude still helps me maintain a positive outlook.
Thanks for all you do and have done for us Crohn's/IBD patients.
Zak is a lucky guy.
I’m allergic to biologic medications I was born with rheumatoid arthritis I have the perfect pain management